Monday, February 20, 2012

Meet Miller


you will hear me mention Miller a lot. well, this is him.
Miller McNeil Woodruff is totally the number one guy in my life;)!
His story is truly amazing and one that i am honored to tell.


sweet little miller was born on march 28, 2011.
pure and true miller is a beacon of hope, faith, and love.



about two weeks after miller was born his parents, patrick and meredith noticed he was not moving his arms or legs as much as they thought he should be.

they took miller to their doctor who immediately referred them to arkansas children's hospital.


it was at arkansas children's hospital that meredith and patrick received news that no parents should ever hear. 
their sweet, sweet baby boy would not live to see his 1st birthday.

miller mcneil was diagnosed with spinal muscular atrophy, a genetic muscular disease much like ALS. 
this horrific disease weakens the muscles until he would no longer be able to breathe or swallow.


even though their world was falling apart, patrick and meredith shared millers story with people in hopes of raising awareness for this disease.

they sure captured my heart. 


i don't know what it is about this little guy, but he has changed me and i will never be the same.

while laying on his mama's chest baby miller earned his angel wings on june 23, 2011. 

although he is no longer here, his legacy lives on. 


it lives on every time a miller hat is passed out. every time a bracelet is bought. 

miller lives on every time someone see's his signature and thinks of him


miller's legacy lives on every time someone remembers his precious blue eyes and gorgeous smile and thinks of him.


i don't know about you, but he is the most beautiful baby i have ever seen.

i truly feel honored to be apart of his amazing legacy.

miller has made my faith stronger, made me love deeper and appreciate more..

miller,
thank you for being with me every day. not a day goes by that i don't think of you. you are truly an angel and i am so lucky to have gotten to know you. love you forever and always little guy.
claire



if you would like to learn more about miller and his sweet family you can go to their website at: www.imwithmiller.com or visit their blog at: www.colecrews.blogspot.com

if you would like to learn more about SMA and see more pictures of miller you can watch this video: 

i'm with miller. 

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