Tuesday, May 1, 2012

SMA didn't take her smile away.

yesterday little avery took her last breath and wen to be with Jesus.

have i said before how much i hate sma?! because i hate it. a lot.

but avery's work is not done. like miller, her parents have committed to keeping her name and legacy alive. i promise i will not stop fighting until we find a cure for sma. miller and avery have put a face to this horrific, horrific disease. 

you have touched thousands of hearts and you did that without saying a word.
we will never ever forget you or your lessons.
call home avery, please send your parents signs.
let them know that you are with them everyday.
we love you avery! 

i had just sent in a letter to the Ellen Show to get avery on her show. 

sma is so mean.

please keep avery and her parents in your thoughts and prayers. let's not forget avery and miller and the lessons they taught us.